FIRST CYSTIC FIBROSIS EDUCATIONAL WORKSHOP

FIRST CYSTIC FIBROSIS EDUCATIONAL WORKSHOP The FIRST CYSTIC FIBROSIS EDUCATIONAL WORKSHOPtook place on March 10-11, 2021, in online format. The event was organized within the HUSKROUA ENI cross-border cooperation Hungary-Slovakia-Romania-Ukraine 2014-2020 together with Slovak Cystic Fibrosis Association, municipal non-profit enterprise «Ivano-Frankivsk regional children´s clinical hospital of Ivano-Frankivsk regional council» and Charitable foundation research innovations in…

Purchased equipment

Purchased equipment Purchased equipment Wosher tablets Labline included for mass neonatal screening, including for the diagnosis of cystic fibrosis in newborns in the area. After commissioning, it is effectively used in the work of medical and genetic laboratory. Ivano-Frankivsk regional children´s clinical hospital has already distributed purchased equipment for daily inhalation therapy (PARI BOY SX…

Distribution of printed materials

Distribution of printed materials Ivano-Frankivsk regional children´s clinical hospital received books translated into Ukrainian “Nutrition of children and adults with cystic fibrosis. 111 recipes for every day” by Gabriela Sabolova, Martina Shvekushova. The book is a practical food supplement for doctors, patients and their families with an emphasis on special medical treatments. We distribute it to…

Project team meetings

Transfer of experience and construction of a CF Center to provide better care for cystic fibrosis patients in the Ivano-Frankivsk region of Ukraine” 17.02.2020 Children’s Hospital, Ivano-Frankivsk, Ukraine “The Member States of the European Union have decided to combine their know-how, resources and destinies. Together, they have built a zone of stability, democracy and sustainable development…

South Eastern European Cf Congress

For the first time on the territory of Ukraine in Kiev the EASTERN EUROPEAN CONGRESS ON MUCOVIDIDOSIS was held. During the congress, clinicians, researchers, and patient representatives were introduced to modern methods of diagnosis and treatment of cystic fibrosis in the Netherlands, the United Kingdom, Belgium, Spain, Slovakia, Poland, Germany and Ukraine. President of the…